I’m joined this week by Sarah, the Afternoon Napper – as she calls herself. Our conversation revolves around her life with fibromuscular dysplasia, her lengthy diagnosis story, what it means to live with a rare disease, and how she’s been able to leverage social media to form a community around a disease that impacts a small number of people in the country. We also talk about Sarah’s dual identities (online) and how these identities are merging. Finally, we discuss Rare Disease Day and the importance of awareness before action. Enjoy.
Follow Sarah on Twitter at @AfternoonNapper and keep up with her many endeavors at:
Run Time – 1:01:12
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Thanks for spreading Fibromuscular Dysplasia awareness!
Thanks for sharing info on our FMD disease, what a trip Sarah has traveled! Sarah, YOU ROCK!!
Thank you so much for shining a light on the rare disease, Fibromuscular Dysplasia. Being a FMD patient myself it brings so much hope when others take a interest to learn about our disease and care enough to allow us a opportunity to advocate. Your kindness in interviewing FMDChat is so appreciated. Peace be with you.